Tung Wynn

Hemophilia Treatment Centers (SPRANS)

Public Health Surveillance for the Prevention of Complications of Bleeding Disorders

2026 ATHN Data Quality Counts Grant - Round 17

ATHNdataset Beyond Factor Replacement Data Validation Project

TWO-PART OPEN-LABEL STUDY OF REGV131-LNP1265, A CRISPR/CAS9-BASED COAGULATION FACTOR IX GENE INSERTION THERAPY IN PARTICIPANTS WITH HEMOPHILIA B

A PHASE III, MULTICENTER, OPEN-LABEL STUDY TO EVALUATE THE EFFICACY, SAFETY, PHARMACOKINETICS, AND PHARMACODYNAMICS OF EMICIZUMAB PROPHYLAXIS IN PATIENTS WITH TYPE 3 VON WILLEBRAND DISEASE

A Multicenter Non-Interventional Study Evaluating Bleeds and Health-Related Quality of Life in Patients with Type 3 Von Willebrand Disease on Prophylactic Standard-of-Care Treatment

Hemophilia Treatment Centers (SPRANS)

Phase 3, Open-label, Single-dose, Multicenter Study Investigating Efficacy, Safety, and Tolerability of CSL222 (Etranacogene Dezaparvovec) Administered to Adolescent Male Subjects (= 12 to < 18 Years of Age) with Severe or Moderately Severe Hemophilia B

ATHN Data Quality Counts Grant Award - Round 16

Community Counts Public Health Surveillance for the Prevention of Complications of Bleeding Disorders (FY24-25)

Assessing the Therapeutic Effects of Exercise on Vascular Access, Trypanophobia, and Kinesiophobia in Patients with Hemophilia

A Phase 3, single-arm, open-label, multicenter study of the safety and efficacy of dirloctocogene samoparvovec (SPK-8011, adeno-associated viral vector with B-domain deleted human factor VIII gene) in adults with severe or moderately severe hemophilia A (KEYSTONE 1)

Prospective, Observational, Multicenter Study of Effectiveness of Efanesoctocog Alfa on Long-term Joint Health in Patients with Hemophilia A

A PROSPECTIVE STUDY TO EVALUATE DISEASE CHARACTERISTICS IN HPROPHYLAXIS WITH STANDARD OF CARE FIX REPLACEMENT THERAPY

Public Health Surveillance for the Prevention of Complications of Bleeding Disorders

ATHN Data Quality Counts (DQC) Program - Round 15

NOURISH-T+: A Randomized Control Trial Targeting Parents in Promoting Healthy Eating and Exercise Behaviors in Off-Treatment Pediatric Cancer Survivors with Obesity

Leveraging the ATHN dataset to Document the State of Rare Coagulation Disorders in the United States

Evaluation of long-term safety of ADYNOVI/ADYNOVATE (Antihaemophilic Factor [Recombinant] PEGylated, rurioctocog alfa pegol) in patients with haemophilia A – An ADYNOVI/ADYNOVATE Post-Authorisation Safety Study (PASS)

Public Health Surveillance for the Prevention of Complications of Bleeding Disorders

ATHN Data Quality Counts (DQC) Program - Round 14

Hemophilia Treatment Centers (SPRANS)

Upper Extremity Exercise to Improve Vascular Volume, Ease of IV Infusions, Factor Compliance, and Quality of Life in Patients with Hemophilia

ATHN Transcends: A Natural History Cohort Study of the Safety, Effectiveness, and Practice of Treatment in People with Non-Malignant/Non-Neoplastic Hematologic Disorders